Thanks all for the responses.
MarySunshine: It's definitely a stages of grief thing. She has cycled through them faster than I thought, but I also expect some recycling, too. I was surprised to read suicides were highest in the first year after dx, I would have guessed later years.
Good point on the autoimmune thing, I had forgotten in the swirl of things that she also has Hashimoto's disease also (autoimmune attack on the thyroid).
It's good to hear about the good husbands out there.
I don't know that I'm at the "blessing in disguise" stage but one silver lining is we are closer in this difficulty, and I do want to hang onto that no matter what the official dx.
Hotwing / Robin: That's good to know there is a resource for kids, mine are teenagers, all we've decided for the moment is to not tell them anything yet. I am trying to think of ways to make life as normal as possible for now and in the future.
Razgo: We bought a truck and toy hauler trailer recently, but it has been more fun to use just as a camp trailer than I ever would have guessed. I had the thought that a motorhome would be a great way to enjoy the countryside with someone with mobility limits. I agree it's a good idea to grab what fun you can sick or well! BTW I had the pleasure to visit Australia many years ago, that was great fun.
Originally Posted by MarySunshine
Sounds like your wife is experiencing the different stages of grief. It's normal. Some of us go through it every time we lose some (even a little bit of) functioning somehow. I've told my husband to find someone healthier at times, but he stays (thank God). The first couple of years are the hardest, especially if the diagnosis takes a long time...
I have dual diagnosis of MS and another autoimmune coniditon (actually 2)...which made things a bigger mess at the beginning. I found peace with reading boks like "Quantum Healing" and biofeedback therapy as well. Feeling as though I have some control over my future helps me stay on track.
I wish you and your wife the best through this journey! It can be a blessing in disguise, too....