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Primary /Secondary Progressive MS For those living with Progressive MS to discuss treatment options and lifestyle issues.

 
 
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Old 06-16-2012, 01:01 PM
sharlykay sharlykay is offline
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Join Date: Jun 2012
Posts: 1
Please Help having hard time

I'm 27 and terrified out of my mind. I was dx in Nov 11 at first it started with a little tingle that didn't go away on my face. I being paranoid went to the dr. and who said worse case it could be ms or a brain tumor and sent me home that was on a friday. so monday I called and requested an mri to help myself feel better. I then got a call that it was abnormal with 3 lesions none of them were inactive. I went to the specialist which did one of my spine and a LP spine came back clear and LP came back positive. well looking back I have had constant fatigue for about 3 years....I also noticed awhile ago that at time my leg would feel off and weak. I didn't think much of it. I don't ever remember having a flair of symptoms and I have noticed that my leg is now constantly tight and at times weak looking back I don't ever remember if my symtoms ever remitted because they were so mild. I am so scared the only person I knew that had ms had ppms and passed away right before I was dx and had had it for about 10 years. My family just doesn't understand I cry ever single day I have a 10 year old daughter for whom I am the only care taker. Then I got online to research it and there was a study that said that they found that obands found in ppms indicated a worse prognosis. This totally sent me over the edge because I had read before that unlike RRMS obands didn't really affect prognosis but this study said that diagnosis under 30 and obands were not favorable...? Did any of you have obands? Anyone dx under 30? Please help I'm sooooo scared. My little girl is talking about when she grows up all this stuff were going to do and it is breaking my heart....
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