urologist confusion

[Aponi]

I had a urologist put in a cath - upon a week later we had to have it taken out to do a biopsy,, then when i went back for my follow up with my urulogist to get the results.. he stated that everything was fine on the ultrasound.

I said okay great, well why am I having to self-cath too often because for the last several months its begun to hurt at the start and just right BEFORE its gonna slow down to stop all the say until it stops. I've been checked several times for infection and there isn't any.

When he had me on the foley cath this was starting to calm down, so i stressed this issue and said with my mobility (wheelchair) and having progressing MS (spms with relapses where its been getting worse each time) - that its getting harder and harder for me to do things..

he said well i want to wait until i hear from your neurologist as to how your MS is doing.. -- i went huh??!! Really I wanted to ask questions about getting a subrapubic cath put in as he discussed on the first visit....and now hes talking about keeping my on the intermittent cathing.. while i understand he wants to keep me independent as possible - i came to him for a reason BECAUSE i am having problems..

i will be seeing this neuro for the first time on thurs and he wants to get something in writing or a call or an rx saying that because of my MS that it would be best for me to get a cath put back in...

is this normal/??
if it is - ok.. but it just sounds odd to me.. and i don't want to go off and try to find another one again

[kebsa]

it does sound like the communication could be better, they could listen to you much better and if there is a reason not to carrry on with the foley cath or suprapubic, they need to explain it too you!!

One thing that comes to mind is you mention the pain when inserting and removing the catheter and the fact that infection has been excluded- I have an sp catheter after having a foley for a while and seeing it was better than no permanent catheter ( i am not mobile enough to self cath) anyway, the sp is great but i do get more bladder spasms and urethral spasm than before but i also have bowel problems now so it seems that it is progression of MS rather than the catheters, it is managable with meds except for when they change the catheter- then i get really intense and very painful spasm, it does not last very long but is really intense, my continence nurse has said that she has seen this happen before in people with MS,

now we have a system that works well, i have a dose of oral valium half hour before hand as well as my usual probanthine and she uses a lube with lignocaine in it even to remove the old catheter- with out doing this not only does it hurt like hades, she has trouble removing it as the muscles just stay contracted in tight spasm- i am finding that over time as the tract for the SP matures, it is less severe and as it is only every few weeks it is managable but if i were to have a catheter inserted daily and have the same pain, that would be intolerable! So not sure if this helps but i wonder if you are like me and that the spasm are made far more severe by the irritation of having the catheter placed, if that is the case then it may help the argument for long term catheter

even with this issue i would not go back to no catheter, this is far better than the accidents and infections of old