creative center.

My Journey Through Life with Multiple Sclerosis

Steve Soto 07/05/2015

“There are no guarantees that we will live a life of health, wealth and happiness…

When we are young, we have feelings of invincibility and omnipotence, the world is ours to do with as we please. We feel we will live forever and health is something we have come to expect.”

Steve Soto’s story begins in 1976. He was twenty-six years old, newly married, and told that he had a brain tumor or an aneurysm. HOW COULD THIS BE HAPPENING TO HIM??

He was active. He had plans. And now someone was telling him that that his eye problems and feelings of dizziness were more than “getting older”…

I, like the author, was young and I had plans.

When I was introduced to Steve Soto’s book, I was intrigued. There were many similarities in our lives – he being a retired Redevelopment manager, and me, being a retired from the federal government building subsidized housing. But what I was most interested in was how did he run marathons AND have M.S.???

When he was diagnosed, he never thought that exercise would be part of his life from that point forward. But it took some time for him to realize that “my life would change, but I was still going to be around for a while, what condition (within my control) I was going to be in was up to me”

Again, our stories are similar. At the time that we were diagnosed, the advice was what NOT to do – don’t get too tired, stressed, and avoid heat, and over-exertion (read that “exercise”). If you were looking for advice on what TO DO, you could become frustrated quickly…

Unless you were willing to take that advice with a “grain of salt” and begin to run – and run – and run! I wish I had known Steven Soto back then. While I did not run a marathon, I did seek out additional information that responded to my need to do something to help myself, and “get moving”. Because, when I started moving, it not only made me feel better, it empowered me to create a different “normal”.

Steve explains “MS and Exercise” in a way that makes the reader feel energized. Even if you don’t run a marathon, you can take control of your life and make your own “normal”. He summarizes diet, exercise and visualization, and the progress of MS therapies, and talks about “Making Choices”.

“If you can run, RUN”. “If you can only squeeze a tennis ball, squeeze a tennis ball. Just do something on a daily basis that you feel is moving you forward either physically or mentally.”

The daily results of my “normal” do not cure me, nor does it consistently improve my MS symptoms. I still experience the proverbial “good days-bad days” routine that is known only too well by MS’ers. But the choices that I have made have provided me with the belief that to “keep moving” is my only choice. Thank you Steve Soto for reinforcing that so well.

Reviewed by Lynn Chambers

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The book review represents the opinions of the writer only. You may have a different opinion when you read this book. Information shared here is not for the diagnosis or treatment of any medical condition. For specific information and advice, consult your personal physician.



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