Sort of new here

[Crazyguy]

My latest MRI of the brain was normal. My evoked potentials were supposedly normal. My neurologist didn’t have the complete results of my lumbar puncture but said one protein was abnormal and was waiting on the other protein results. He has referred me to UCLA for yet another opinion.

Im lucky I have an understanding employer because my previous job would have fired me by now with all the work I’ve had to take off for tests and doctors appointments. I’m getting pretty discouraged that I may never get a diagnosis. I’m certain I have MS but that’s not what bothers me it’s validation that I’m looking for. Id also like to get on some sort of DMT so I have the best chance at avoiding disability. Although I’m already pretty messed up.

[KoKo]

My latest MRI of the brain was normal. My evoked potentials were supposedly normal. My neurologist didn’t have the complete results of my lumbar puncture but said one protein was abnormal and was waiting on the other protein results. He has referred me to UCLA for yet another opinion.

Im lucky I have an understanding employer because my previous job would have fired me by now with all the work I’ve had to take off for tests and doctors appointments. I’m getting pretty discouraged that I may never get a diagnosis. I’m certain I have MS but that’s not what bothers me it’s validation that I’m looking for. Id also like to get on some sort of DMT so I have the best chance at avoiding disability. Although I’m already pretty messed up.

Hi Crazyguy ~

Thanks for the update.

I can understand your getting discouraged, with having no diagnosis to explain your symptoms.

Are you going to UCLA for another opinion?

Maybe they will figure it out.

Take good care of yourself while going through this very trying time, ok?

Take Care

[REG53]

Hello Crazyguy, I know how discouraging it can be (I have been there),I hope UCLA can give you some answers.

[Crazyguy]

Yeah, my current neurologist set me up with them. I have an appointment on October 24th

Hi Crazyguy ~

Thanks for the update.

I can understand your getting discouraged, with having no diagnosis to explain your symptoms.

Are you going to UCLA for another opinion?

Maybe they will figure it out.

Take good care of yourself while going through this very trying time, ok?

Take Care

[Mamabug]

I'm glad that your current employer is understanding.

I hope you get some answers at your October 24 appointment.

[Crazyguy]

I’ve been hesitant to share what has been going on with me out of embarrassment. But I suppose I’m ready now. I went to UCLA and the neurologist there told me my current neurologist thinks my problems are psychological. She told me she would look over my records and get back to me. I had some difficulty with this and my psychologist told me to take a break from seeking a diagnosis for a while. The UCLA doctor concurred with my neurologist.

I’ve suspected this whole time my doctors have been lying to me to protect me from psychological harm. My anxiety for the past 3 years has been so debilitating that it has affected everything in my life. But I noticed that with that last round of what I would consider lies. I felt a sense of relief. I still have my moments but I’m much happier and less anxious. I know if I can keep up my mood and positive attitude my doctors will eventually diagnose me. I’m not currently seeing a neurologist but we’ll see what happens. I still have symptoms and I deal with them. We’ll see what the next year brings. I don’t think I’ll ever be the same but I think I can live my life now.

[Mamabug]

I don't have any advice for you.

But thanks for keeping us updated.

[KoKo]

I’ve been hesitant to share what has been going on with me out of embarrassment. But I suppose I’m ready now. I went to UCLA and the neurologist there told me my current neurologist thinks my problems are psychological. She told me she would look over my records and get back to me. I had some difficulty with this and my psychologist told me to take a break from seeking a diagnosis for a while. The UCLA doctor concurred with my neurologist.

I’ve suspected this whole time my doctors have been lying to me to protect me from psychological harm. My anxiety for the past 3 years has been so debilitating that it has affected everything in my life. But I noticed that with that last round of what I would consider lies. I felt a sense of relief. I still have my moments but I’m much happier and less anxious. I know if I can keep up my mood and positive attitude my doctors will eventually diagnose me. I’m not currently seeing a neurologist but we’ll see what happens. I still have symptoms and I deal with them. We’ll see what the next year brings. I don’t think I’ll ever be the same but I think I can live my life now.

Hello Crazyguy ~

Thank you for sharing the update on your neuro visit, even though it was difficult for you.

You're doing the right thing by taking care of your anxiety and attitude.

Maybe taking a break from seeking a diagnosis for awhile, as suggested by your psychologist, will be beneficial.

Let's hope your symptoms lessen or subside. Time will tell.

Take Care

[SNOOPY]

Hi Crazyguy.

I have been thinking of you lately and how things are going. Thank you for updating

It’s great that you see a Psychologist. Have you considered seeing Psychiatrist? A Psychiatrist can prescribe medications that can be helpful for your anxiety.

Anxiety can cause many physical symptoms. If your symptoms are a physical manifestation of your anxiety you could see a decrease of your symptoms. Treating your anxiety could help you and your Drs. in determining if symptoms are a physical manifestation of anxiety or not.

Take care

[Crazyguy]

Hi Crazyguy.

I have been thinking of you lately and how things are going. Thank you for updating

It’s great that you see a Psychologist. Have you considered seeing Psychiatrist? A Psychiatrist can prescribe medications that can be helpful for your anxiety.

Anxiety can cause many physical symptoms. If your symptoms are a physical manifestation of your anxiety you could see a decrease of your symptoms. Treating your anxiety could help you and your Drs. in determining if symptoms are a physical manifestation of anxiety or not.

Take care

I’ve been seeing a psychiatrist since I was 18 for my psychotic disorder. I have been taking Ativan for my anxiety. I normally don’t have many symptoms except cognitive ones are daily. And when it rains my muscles in my arm and leg cramp up. Sometimes I get fatigue that lasts for a couple days but that’s about it.

I asked my psychiatrist a while back if he felt I had somatoform disorder and he told me I definitely don’t have that. I’m certain that next year I’ll get another opportunity to try. I will let everyone know if anything happens.