Thread: Where has everyone gone?
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11-10-2019, 06:43 PM #46
It's good to hear from you, Kimba, as we have missed you!
Sorry that you've had some hard times and hope things are looking up for you.
Looking forward to hearing more from you1st sx '89 Dx '99 w/RRMS - now SP w/o flares
Administrator Message Boards/Moderator
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11-11-2019, 12:01 AM #47
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11-11-2019, 12:08 AM #48
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11-11-2019, 12:16 AM #49
OMGoodness Kimba you certainly have had some setbacks.
I hope you are starting to feel much better.God Bless Us All
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11-11-2019, 01:33 AM #50
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11-11-2019, 02:27 AM #51
Yes; Kimba. It's good to hear from you again!
~ Faith
MSWorld Volunteer -- Moderator since JUN2012
(now a Mimibug)
Symptoms began in JAN02
- Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
- In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08.
- Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
- Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.
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11-11-2019, 03:02 AM #52
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11-12-2019, 12:44 PM #53
Registered Member
- Join Date
- Feb 2011
- Location
- Goondiwindi, Australia
- Posts
- 2,849
Still here. Waging a six month battle with the NDIS - (Australia’s National Disability Insurance Scheme). It is a bureaucratic nightmare.
Yes, I’m approved, and yay they pay for a cleaner. There’s a plan manager ($1500 p.a.), a plan reviewer ($1500), an OT assessor ($2000 a trip) and on and on and on.
I had a recliner/lift chair approved in April. PT and GP said I needed it. Rollator, scooter, saggy lounge and exciting falls have wrecked my back and shoulders. It’s been complete screw-up. I’d have bought the bloody thing myself except they assured me it was on its way.
Phone calls, emails, texts waiting, waiting, waiting.
Yes, I am pleased about the free cleaner.
The plan people treat you like you’re an idiot, and know nothing about MS.
They’re obsessed with “community involvement”. Would I like to go out more? Do I need a social worker to take me to the supermarket? NO, I need a bloody lift chair.
So, that’s me. Sitting on a saggy couch, trying to be polite to people who are driving me nuts.
Could be worse.
Love to all. 💕
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11-12-2019, 03:42 PM #54
Moderation Team
- Join Date
- Aug 2005
- Location
- USA
- Posts
- 3,989
Hello Thinkimjob
Thanks for checking in with us!
Sorry that you have to go through so much stress and frustration trying to get your lift recliner. What a pain!
I couldn't do without my recliner for very long, as I use it for sleeping.
Hopefully you get yours soon.
And also hope you are able to check in more often, to let us know how you are doing. Always like hearing from you, Thinkimjob
Take CarePPMS for 21 years (dx 1998)
~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~
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11-13-2019, 12:41 AM #55
Hello Thinkimjob, I can certainly can relate about the ins. com's. I remember one time I finally broke down and cried. So frustrating.
I hope you don't have to wait much longer on your lift chair.God Bless Us All
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11-13-2019, 01:18 AM #56
Good to see you, Think! Have been missing you. Hope that chair arrives soon enough and you get exactly what you asked for.
Red tape is red tape, no matter where you live. I've been going through that getting my scooter repaired. Waiting 3 months now.
Let us know when it arrives and take care!1st sx '89 Dx '99 w/RRMS - now SP w/o flares
Administrator Message Boards/Moderator
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11-13-2019, 06:03 AM #57
Hope things resolve for you Think! I can only imagine how frustrating that must be. Good to see a post from you.
Likewise Kimba - glad to see a post from you!Kathy
DX 01/06, currently on Tysabri